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rare disease
Odisha CM Mohan Majhi tells officials to provide aid to minor boy with rare illness
Majhi also told officials concerned to provide Rs 30,000 from the Chief Minister's Relief Fund to his family members, according to an official statement.
16 June 2024, 09:59 IST
Odisha CM Mohan Majhi tells officials to provide aid to minor boy with rare illness
16 June 2024, 09:59 IST
A rare disease and a family’s story
In India where basic healthcare is still not accessible, some citizens are calling attention to disorders with low prevalence. Prasanna Shirol shares what this journey looks like. His daughter was India’s first Pompe patient.
30 March 2024, 00:00 IST
A rare disease and a family’s story
30 March 2024, 00:00 IST
Five books on rare diseases
Metrolife’s reading list zooms in on a few such diseases and inspiring stories of patients and their caregivers.
28 February 2024, 00:28 IST
Five books on rare diseases
28 February 2024, 00:28 IST
India to manufacture expensive medicines for 13 rare diseases: Govt
In the first phase, four such medicines have received the marketing approval while another four drugs are under process for approval. These eight medicines will be needed to treat six rare diseases, most of them being genetic in nature.
24 November 2023, 19:24 IST
India to manufacture expensive medicines for 13 rare diseases: Govt
24 November 2023, 19:24 IST
Fundraiser for kids with rare disease
30 May 2023, 17:54 IST
Fundraiser for kids with rare disease
30 May 2023, 17:54 IST
Researchers tie up for treatment for rare diseases
Inadequate early-diagnosis systems and staggeringly high treatment costs make RGD a complex challenge
25 April 2023, 23:19 IST
Researchers tie up for treatment for rare diseases
25 April 2023, 23:19 IST
Customs duty on drugs for rare diseases cut to zero
The government has exempted Pembrolizumab (Keytruda), used in treatment of various cancers, from basic customs duty
30 March 2023, 17:04 IST
Customs duty on drugs for rare diseases cut to zero
30 March 2023, 17:04 IST
In Pics | Celebrities who were diagnosed with rare diseases
While celebrities often prefer to hide their personal and private lives and in particular their health conditions, there are a few who broke this barrier and publicly spoke about their illnesses. Here we take a look at some celebrities who have been vocal after being diagnosed with rare diseases.
18 June 2022, 07:20 IST
In Pics | Celebrities who were diagnosed with rare diseases
18 June 2022, 07:20 IST
Cash aid for rare disease patients hiked to Rs 50 lakh
While it was previously offered to only 40% of the population eligible under the Pradhan Mantri Jan Arogya Yojana for a certain category of diseases, it will now be available to all
22 May 2022, 22:44 IST
Cash aid for rare disease patients hiked to Rs 50 lakh
22 May 2022, 22:44 IST
Delhi HC slams Centre over unused rare diseases fund
A bench of the high court questioned why the funds were not being given to children suffering from rare diseases despite an availability of Rs 193 crore
07 December 2021, 14:47 IST
Delhi HC slams Centre over unused rare diseases fund
07 December 2021, 14:47 IST
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